Article

Life as the partner of someone with OCD

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“I see it as a kind of third person in the relationship— one you can choose to feed or starve.”

Partner of someone with OCD

This is how Nikolaj describes the role OCD has come to play in their relationship. He talks about life as the partner of his wife, Laura, who has and health OCD, including a fear of developing cancer. Laura and Nikolaj have known each other for 13 years, but it is only within the past few years that they have understood her reactions as OCD. Therapy has given them knowledge and practical tools that make them better able to manage OCD at home.

Question

What was it like being Laura’s partner before she started therapy?

Answer

“I’ve always known that Laura has anxiety, but at the time I thought of it more as anxiety attacks and did not connect it with OCD because I did not know much about it. Laura’s anxiety attacks were also more intense and more frequent then than they are today. We were essentially doing what we do now—talking about it—but we did not have the same knowledge about OCD then, so the conversations often became long and went round in circles. Laura felt reassured, but she did not yet have the tools to deal with the thoughts more directly, and neither did I. Back then, I had to take a very deep breath more often—for example, if she woke me during an anxiety attack at three in the morning—because I knew it could become a long conversation. She can still wake me at night, but I find it easier to handle today because we know what helps her. So I usually listen and give her a hug, but then I also ask what she needs to do next to bring her anxiety down, and fortunately she knows much more about that today. I cannot treat her OCD for her.”

Nikolaj makes an important point here. Partners and family members can easily slip into the role of therapist or take on the fight against OCD themselves, but neither is their responsibility. It is the psychologist’s role to provide treatment, and it is the person with OCD who works on their exercises. When anxiety is high, the person with OCD will often seek help from someone close to them because the situation is distressing and difficult to manage. Those close to them want to help, but may become frustrated and feel powerless when the person with OCD is stuck in their thoughts. The combination of anxiety and frustration can lead to discussions or arguments that help neither person. Before perspective can return, the person with OCD needs to use the tools they have been working with in therapy.

Question

OCD has always been part of your relationship. In your experience, how can you best support Laura? What has worked, and what has not?

Answer

“Anxiety has never been taboo in our home, and talking about it works for us. Laura turns to me when the thoughts become too overwhelming. I know her, of course, and I know that she has always been like this. I think I can tell Laura’s own thoughts from the thoughts driven by OCD. It is simply so obvious when it is OCD. Then I tell her that I am not worried because I recognise the pattern. I try to look for clues as to what has caused the OCD to flare up just then, and I know that it happens particularly during stressful periods. It has also become easier to handle since I learned more about OCD, because now I know that they are not really Laura’s thoughts. I am probably also just someone who does not dwell on things very much.”

Question

Do you have a particular arrangement or for how you manage OCD at home?

Answer

“No. We have simply worked out what suits us best: talking openly about it and using the tools we have learned about. In a way, I suppose that is an agreement too—being explicit with each other about what works.”

Question

Without a family agreement setting out how to manage OCD, can you tell the difference between supporting Laura and supporting her OCD?

Answer

“I am not entirely sure what you mean?”

Explanation

When people with OCD are anxious, they often need others to reassure them that what they fear has not happened or will not happen. A person with health anxiety might, for example, ask their partner to check for a lump and confirm that there is nothing there, or ask to be told that the marriage will last. This is called because the person with OCD seeks reassurance from someone close to them. If the partner checks for the lump, the person with OCD also learns that trusting their own judgement is not enough and that seeking reassurance from others is necessary. In the end, this supports OCD even though it feels as though you are supporting the person.

Answer

“Yes, I can see that. I do not think I can say that I have never supported OCD, but that was certainly more common in the past, when I did not know as much about it. Now I leave more of the work of fighting it to Laura, using the tools she has, and I am more of a calm presence she can turn to.”

Question

It is good that you have become more aware of how best to support Laura rather than her OCD. What else has learning that Laura has OCD meant for you and for your relationship?

Answer

“As we came across the term OCD in different places, we began to feel that the descriptions fitted Laura’s reactions. Her previous therapist also thought it was OCD, and they talked about it, but I do not think it was the main focus of therapy at the time. As we have realised that it is OCD, I have gained a more practical understanding of what OCD is and how to view it. I see it as a kind of third person in the relationship—one you can choose to feed or starve. That information and Laura’s therapy have given us both knowledge and tools for managing it. Anxiety has never been taboo in our home, but I feel that Laura can open up more to me and finds it easier to put her thoughts into words since starting therapy. Perhaps because she knows that I understand more about it now, she is less afraid of what I might think. As Laura has told me she learnt in therapy, it is partly about taking the wind out of OCD’s sails by talking about it. Therapy has made all of this more concrete, and we now have a basic understanding that makes it easier to talk about. I used to become a little worried if Laura said, for example, that she was unsure whether she had thoughts about a male colleague and feared that this meant she did not love me enough or in the right way. Knowing that OCD is giving Laura these thoughts has eased some of my worry, because then I know that it is not really her thinking that way.”

Question

Now that you have gained more knowledge and more tools for managing OCD, how do you feel about the future? What role does OCD play in your marriage?

Answer

“I am not too worried about that. I think I have a reasonable understanding of what OCD is about and how to handle it. I recognise the pattern of it flaring up during stressful periods or major upheavals. Laura has also become much better at knowing when and how to deal with the thoughts. She does not dwell on them as much now, but deals with them sooner and knows more about how to manage them. And I have a better idea of what I can do to help her out of a spiral of OCD thoughts. I do not think we will ever be completely free of OCD, but it has already become easier to manage, so I feel fairly calm about the future.”

The interview shows that Nikolaj and Laura have found a natural approach that works for them. They talk openly about OCD in their marriage, and Laura feels able to talk to Nikolaj about her thoughts. Nikolaj responds with the calm Laura needs while recognising that he cannot fight OCD for her. Learning more about OCD has made it easier for them to take a clear approach to it.

Finding an approach to managing OCD at home that works does not come naturally to everyone. Everyone is different, and it is entirely natural to need to talk it through. Thank you to Laura and Nikolaj for contributing to the article. The names are pseudonyms used to protect the couple’s privacy.

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